Hi there,

People often say they know how you feel. They really don't. I am going through very similar at the moment. My final MRI is next week. It will decide my diagnosis too.

You have to give yourself a break. I'm a neat freak and I hate to let dishes sit in the sink and laundry pile up but we have to give ourselves a break. Just be a bit more gentle on yourself. My partner is at end of year exams and assignments for the end of his degree. I'm trying to support him as much as possible while getting used to meds and trying to mentally deal with my upcoming tests and diagnosis.

I try to see it this way. I've already had all the miserable symptoms I could possible get except blindness so I know what's coming. I've had all the bad stuff already. It just means there will be a name for it all instead of having a big bag of problems.

I'm on a good medication now that is helping a lot of my symptoms. You will find it much easier to cope when your pain and symptoms are medicated. It takes some mental stress away and helps you to think clearer.

I couldn't imagine feeling this much better before I was medicated. I was very sad a lot and felt very down. I couldn't imagine I would ever feel "normal" again.

You are allowed to be sad, angry, frustrated, confused and whatever you want to feel. Everyone copes differently and takes varying times to get used to new conditions. Sometimes you can also be a little selfish. I need to remind myself that I am important too as much as I need to be there for others, I deserve people to help me too.

I hope you start to feel better soon. I try to rest on the bad days and whoop it up on the days I have energy and feel a little better. Grab every little bit of fun and happiness out of the good days. It helps you through the bad ones