Thread: So frustrated
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Old 09-26-2014, 01:24 AM
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default we DO understand!!

Trust me when I say, we here completely understand what you are going through!! It is so difficult for anyone who hasn't had Crps to understand the level of pain, not to mention the limitations we can suffer.
You might want to see if your family/loved ones could talk with your doctors with you. Or maybe see a pain management specialist together. That way they might have a clearer understanding. Even then the stress (emotional and physical) can be as bad as the pain.
When I was first diagnosed with crps, for the first year was the worst. Try to stay strong and know that we are all here for you. I had to relearn to do everything, from cleaning up the house to driving my car, so I wasn't in a constant state of a "Flare up" pain wise. I'm currently on two different pain medications and a non narcotic pain med as well as a ketamine/gabapentin/lidocaine compound cream. I have had months of physical therapy, nerve block(failed), pain management therapy, and that was only a few things out of the first year lol! It's a very tough process but it will get easier. Finding a good doctor who KNOWS how to treat crps is the key.
I found this site on one of my lowest days. Simply being able to talk with others who knew what I was going through, helps immensely!! Any time you need to talk, we will be here for you!!!
It's not that it gets "eeasier" per say either. I think it's more learning your limitations and finding the right med combination. Therapy can be very important and helpful too. Having someone to talk about everything you've been going through, privately, sometimes elevates the internal stresses that you can't voice to others.

I'm sorry to hear that you're doing through all this, please contact me anytime you want/need to talk!! And try to stay strong, you CAN get through this.
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"Thanks for this!" says:
birchlake (10-07-2014), eevo61 (10-07-2014), moosey2me (10-08-2014), Phaedra (10-07-2014)