Quote:
Originally Posted by Neurochic
I really hope that you won't be offended by this but your extensive over-analysis seems to be more of an issue than your post-fracture physical situation.
Regardless of what your doctors might have mentioned, you just don't even come close to meeting any of the criteria for a diagnosis of CRPS. The diagnostic criteria have to be satisfied in exactly the same way for the very mildest case of CRPS as they do for the far more severe cases that most people who are regularly posting here have. If you had allodynia or hyperalgesia you would certainly know about it. Allodynia is regarded as one of the 'cardinal' clinical signs of CRPS. It is unmistakable when you have it.
I'm not trying to be harsh but you aren't doing yourself any favours by keeping looking for answers that you are extremely unlikely to ever find. I don't think obsessing over something you are 99.9% certain not to have is helping you move forwards. The reality is that even if you have had a delayed healing process from a fracture, you have ultimately made excellent progress, you are experiencing little inconvenience from the remaining limitations you have and I have little doubt that as you continue your recovery, everything will resolve and be back to normal or near normal in due course. You just need to be a bit more patient - let time and healing happen. Everything you have described in terms of sign and symptoms points to a normal if slightly slower, post-fracture healing process. Since you are making an excellent recovery, there is no point in now trying to get lots of tests done especially since no tests that can be carried out at this stage will give you any answers either way regarding a diagnosis of CRPS.
Between 33 and 50% of patients who consult neurologists with what seem to be neurological signs and symptoms never receive a diagnosis. They never get any answers or explanations. You are unlikely to get any answers to your questions. Going to yet more neurologists or other healthcare professionals for opinions and tests isn't actually likely to result in any answers. I know it's difficult to get your head round that and you are obviously someone who analyses everything in great detail so having to move on with your life leaving these unanswered uncertainties won't be easy for you. Unfortunately, that is the harsh reality of the world of neurology and rare medical conditions. It is a reality that many of us here have been shocked to discover and we have then had to come to terms with the fact that medicine can't give us answers or "fixes".
The practical reality is the same regardless of whether someone is just healing a bit more slowly than they would like from a fracture or whether they have had CRPS that has now resolved itself. You keep up your rehab, walk normally, do all your other normal activities and get on with the rest of your life. Continuing to focus on something that you don't have and that isn't causing you problems with your daily life is only anchoring you in the past, wasting energy you could be using for other things and stopping you moving forward.
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Thanks Neurochic,
I don't think your being harsh. But it's possible your more informed or confident then I am. For instance, your insight into allodynia.
> If you had allodynia or hyperalgesia you would certainly know about it. Allodynia is regarded as one of the 'cardinal' clinical signs of CRPS. It is unmistakable when you have it.
Gives me added confidence I didn't have before that I understand the situation correctly.
Lets keep in mind that a CRPS specialists and a knowledge orthopedists have diagnosed me with CRPS. Another CRPS specialists wants to see me again for a follow up. Meanwhile, you and others on this forum feel confident i don't have CRPS.
The situation is far from resolved. Even in the best case outcome and my Doc on wed tells me he thinks its not CRPS leaves me 2 for and 1 against.
I'm spending this much time on the subject because its extremely important, costly and time sensitive. My understanding is that if it is CRPS then its in my best interest to have treatments done. The one doctor recommended a lumbar nerve block, which would have already taken place had i agreed. Agreeing or not agreeing to this and other procedures is my choice. A choice which, given the possible cost, is one I would like to make informed.
I'm doing all this because it gives me a sense of control in a situation where their seems to be very little. Because to do otherwise is to repeat a mistake I have made with other injuries in the past to my regret.
Finally, I'm posting this because it helps to talk to people. Ironically, i'm normally very reserved. I hardly seek out companion or socialize unless their is another goal. I think by turning this into a research project i'm emotional distancing myself from the problem. Fighting the fear by understanding it. Every time I post here and someone tells me I'm being paranoid I get a huge boost. I can't thank everyone enough for their help in that regard.