I was originally diagnosed with ms in 1974, recently 3 neurologists have said that I have a neurogenerative disease. Since that is an umbrella term, with a lot of neuro diseases under it, I asked for further explanations. The neuros said that I have symptoms of several things like parkinsons, huntingtons, multiple sclerosis. Since it is several things involved I was told they don't want to put a name to it and are not sure how to treat it so they are treating the symptoms.

I liked it when I at least had a name for it, MS. Attended support groups and was very involved as an advocate. Now I don't know where I belong.