Thread: MS or something else?
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Old 09-28-2014, 03:41 PM
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Join Date: Aug 2014
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Originally Posted by Bob-pa View Post
I was originally diagnosed with ms in 1974, recently 3 neurologists have said that I have a neurogenerative disease. Since that is an umbrella term, with a lot of neuro diseases under it, I asked for further explanations. The neuros said that I have symptoms of several things like parkinsons, huntingtons, multiple sclerosis. Since it is several things involved I was told they don't want to put a name to it and are not sure how to treat it so they are treating the symptoms.

I liked it when I at least had a name for it, MS. Attended support groups and was very involved as an advocate. Now I don't know where I belong.
I got the results for an autonomic test, everything is normal, so far blood tests, two MRI, nerve conduction tests are all normal, the neurologist appears to have ruled out small fiber neuropathy, Lyme disease and multiple sclerosis, but the symptoms continue - not sure where to go from here, or what to look at/research next, any suggestions?
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