Hello Sally,
Welcome to the NeuroTalk Support Groups.
I'm sorry you're in so much pain.
I suggest posting in both the forums posted below.
That way the members there can offer their ideas about what's going on for you as well as information and support.
Spinal Disorders & Back Pain Forum
and
Thoracic Outlet Forum
I hope you can get this sorted and that your pain is lessened soon.
take care.