Member
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Member
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Hi Bob,
You sound like this was not a good introduction to MG or to Mestinon. I don't know of course, but it might be that the Neuro was blaming some of your existing problems on MG. That may or may not be the case. You certainly need to go back to the Neuro and explain how you reacted.
If the twitching, cramping, and especially not breathing at night is a result of MG or of Mestinon, then you probably ought to be in hospital until you can be stabilised.
Overdose of Mestinon can cause the same symptoms as MG itself. Your neuro said that you definitely have MG. Did he/she explain what made the diagnosis so certain? It could be important to you.
In the meantime get back to see your Neuro ASAP. If your breathing deteriorates, call the hospital. If things settle and you are up for it, try 30mg to see if that makes you better or worse. Document the effects, it might help your Neuro.
Good Luck, and remember that there are plenty of people here with more experience, if you need any more questions answered. But this disease affects each patient differently.
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