Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Clare, An EMG is not the right test for a peripheral neuropathy. There are more specific tests for that! Go to the peripheral neuropathy forum here and they'll answer any questions for you!
Also, have you had your vitamin B12 checked? That's the most obvious cause of PN.
If you want your eyes assessed, go to see a neuro-ophthalmologist! Don't rely on one doctor to figure everything out. They see things from their own speciality and might not even have the depth of knowledge to understand MG or what else might be going on!!!
And what you are describing sounds as though it is fatigable (hard to tolerate without payback); meaning that it gets worse the more you do. That sounds like MG, not PN!
Did they do the MG MuSK antibody test, too? What about a Single Fiber EMG?
Do you have a good internist? They can check out some basic things for you, too.
Are you short of breath at all?
Sometimes it takes a few doctors to figure out exactly what's going on. And if you have MG, you need to know that! I hope you can get this all figured out soon.
Annie
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