Member
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Join Date: Jul 2014
Posts: 141
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Member
Join Date: Jul 2014
Posts: 141
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Thank you for your response, Snoopy.
No, my primary care provider ordered a couple of more panels that were more accurate than my neuro had ordered for RA and Lupus. I have had so many tests, scans, dopplers all since March. Cranial blood pressure, carotids have been checked, Evoked Response Potentials-Visual, EEG, LP, MRI's (brain, cervical, thoracic), all the different blood work including fasting glucose and a1c...nothing out of the ordinary.
My chronic migraines, all over body pain (feels like it is in the tendons and right up against the bones), and the cognitive and memory issues and the fatigue, balance, anxiety all led him to this diagnosis. I also have early cataracts and corneal edema causing visual issues.
I still have to have a brain MRI every year for the next 5 years. To follow up on the spots on the MRI done in March.
I have a feeling that I have not reached the end of this road yet. I think this has only been a short leg of this journey and I fully intend to remain proactive. My primary care is proactive and intends to help lower my pain level, without controlled pain killers (I refuse to take them due to rebound migraines),
Y'all have been so wonderful and supportive through this journey and I want each of you to know that I truly appreciate you. I have posted on the FM board and I have not heard a word from anyone. I guess I may have to shake some people to life over there...LOL
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