Originally Posted by dahlbaby

I am new to this forum and am having trouble figuring out how it works, but here is my story. I am 38 and have been dealing with TOS since I was 16. I had an extra rib under my right collar bone and I had severe muscle loss in my hand, arm and neck. It was very difficult for the DRs to figure out what was wrong. Finally they found the rib, removed it and all was good for 10 years. In 2003 all the symptoms came back with a vengeance. After a year of trying to find the problem, we found that the rib had only been half removed from the first surgery. Now, again, 10 years later I am having all the same symptoms on the left side, mainly the pain and muscle loss, this all started after I was rear ended and my T-1 was herniated. Sadly, there is no extra rib so DRs aren't sure what to do. Good new though, I have an appt with DR Johansen in a month and a half. Praying he helps me. I am having one weird symptom that I didn't have with the other 2 TOS's and was wondering if anyone else has experienced it, I get a tingling sensation in my neck, goes down my arm and blotched of goosebumps appear. I have a pic of these bumps but I am not sure how to post pics, if we can.