Hi Moosey,

Have you worked with the device Reps to adjust the settings like the Hertz and Amplitude or area of stimulation? I have to change my Hertz constantly in order for it to help. I honestly don't get any relief from it in the area of where my original CRPS II began but, I do find it beneficial [combined with other methods of treatment] for the areas of spread. I have had mine for 1.5 years but, I also have a pain pump [filled with fentanyl and ropivacaine], I still take oral meds, use lidoderm patches and spend my days doing therapy on/off throughout the day just to manage the pain. The thing for me and this may be different for you is that - no one form of treatment is enough. They all including the SCS only help a little.. and sadly sometimes not at all so working with your doctors to have as many 'tools' available to help combat the pain so you can keep functioning is key. It took me a while to realize that there was no single magic treatment.. once I grasped that and then worked with my doctors we have come up with a multitude of things that help me better cope. Each day or minute for that matter is different.. and somethings work sometimes and sometimes they just don't but I never give up or stop using something entirely when it doesn't work as well (or at all) one day.. it may work again or work better in combination with something else.


I know others have had problems with the SCS but at least for me, I am glad I have it.

I hope this helps - please don't hesitate to ask more questions if I didn't cover everything or wasn't clear enough in my answers.

Wishing you better days ahead,
Tessa