Quote:
Originally Posted by Sweetstacey
Hi, I have joined this group looking for people with same diagnosis that I have just been diagnosed with, small fiber neuropathy.
At this time the neurologists best guess is that it is due to having had gastric bypass surgery seven years ago and now having multiple vitamin deficiencies.
The pain is terrible, burning, aching, stabbing, electrical shocks, in my feet, toes, legs, thighs, knees, ankles and now hands and fingers too.
It's so frustrating to have this pain and still try to work (I do physical therapy in an acute care hospital), I can't take meds because I need a clear head for work. I have been prescribed a ketamine infusion cream from a compounding pharmacy that helps some, but ketamine soaking into blood stream still is giving me side effects of sleepiness and "foggy brain".
This is such a new diagnosis that I'm completely lost and don't know how to deal with this pain and the doctors haven't had much to offer. He had me see a hematologist for IV iron transfusions which I'm still waiting for an appt to do tranfusion. In the mean time do I just keep hurting and hobbling around work?
Fay help or advice would be greatly appreciated, especially any easy home remedies that anyone knows.
Thanks
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Hi Stacy. You have my sympathy. I was dx'ed with SFN about a year and a half ago. All you symptoms sound very familiar as other will tell you. There is no cure for SFN; just pain management. You have been given excellent advice here already as to having certain vitamins, etc. checked as Vitamin D deficiency will certainly attribute to your symptoms along with the others. I just wanted to say that I started on neurontin (gabapentin) and while it seemed to work, I, too, have been unable to get accustomed to the grogginess, though I am not certain I gave it enough time. I have just switched to Lyrica at a low dose (50 mg) to see if it will work. It has not been as effective as the gaba yet, but I have only been on it for just over a week. Dr. said that I can up my dosage but first have to get used to the 50. All that being said, if you want to try either gaba or Lyrica, try it for at least a month to see if your body can get used to it. Many on these boards have both success and failure with these meds and you won't know until you try. If you are able, give it a try. A warning: Lyrica is tricky for some insurance companies to approve without trying the gaba first. My insurance finally approved it but my co-pay is $25. Not bad, but most of my other meds are free. I wish you the best. Don't give up!