Quote:
Originally Posted by Hannajane
No one around me gets what I am going through...I have rsd in my hand/wrist and now I belive its spread to my shoulder. How did you all cope or come to terms with this diagnosis and pain....I'm miserable. I enjoy nothing. I can't sleep. I'm in soooo much pain. All the drs want to do tests and tests and more tests. Hen they take weeks/months to get them done.....and all the while I sit here suffering....it's not fair  |
Have you tried a heating pad?Heat can do wonders for me..Also a small glass of wine...It claims me down,inwhich decreases the pain level..I to have a hard time sleeping.I have rsd in my right hip,knee,thy,and foot..In the beginning.Now I also have it in left knee too.I also have tried ebsons salt on a hot wash cloth..put the salt on the washcloth after heating with hot water,not to burn you though..do not need that..lol...but then place it there,and it does help . I love laying in bed though,because the moment I put my feet on the ground my ankles hurt so bad.Does anyone else get that?This is just my opion I feel all those test do not prove much..I guess look for breaks,etc..but I never had a test that said oh ya rsd...lol...I have had this for 4.5 years,i now have a stimulator,it helps some..you really need to focus on what you can do and push ahead.You are in my prayers..
