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Old 06-07-2007, 05:20 PM
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betsyherm betsyherm is offline
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Join Date: Apr 2007
Location: High Point, NC
Posts: 70
15 yr Member
betsyherm betsyherm is offline
Junior Member
betsyherm's Avatar
 
Join Date: Apr 2007
Location: High Point, NC
Posts: 70
15 yr Member
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Thanks for the extra info! I agree with Jo55---I know little about TOS, but there are a lot of symptom similarities between it and RSD.

I obviously can't make a judgement in your case...you could have anything, and I'm definitely no expert! I only know my own experience with RSD (12 years and counting) and the stories of many other people. To me, it doesn't sound like typical RSD, but what IS typical RSD? It effects everyone differently.

Here's what makes me think it might not be RSD: the worst pain is not where you were originally injured. Usually, but not always, the first place the RSD hits is the worse. In addition, you said that your covers don't hurt. Not everybody with RSD has extremely severe allodynia, but I think that most do. One commonality that you see in most people's RSD stories is severe pain from the lightest of touches. To the point where a cotton ball lightly touching the skin can bring tears. Not everyone is quite that severe. On my good days, I even wear pants, shoes and socks. It's not really easy though, and I have to have a sock that stays in place to keep my pants leg from direct contact with my skin.

I'm sorry to hear about all of your struggles. Whatever it turns out to be, I hope you find some relief! I first got RSD when I was 12; I'm now 24. It hasn't been easy...far from it, to be honest. But I can assure you that things can get better!

Good luck!

-Betsy
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