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Originally Posted by PCSfog2012
headache free yesterday and so far today. and yes, i told 3 people in my family and I have countless text messages and voicemails asking if I'm better now. I get about 4 messages a day and wish I never told them. I just stopped responding and have my better half answer them. Thankfully I didn't tell anybody else b/c people (that aren't on this board or experiencing it) just don't get it.
If and when I'm better, believe me: everyone will know as I'll shout from the rooftops. Ok, maybe not the rooftops since I can't afford a fall  |
i am so happy for you that you are having a 3rd headache free day. i am so afraid to jinx anything but yay!
i hear ya.. if it works, we tell EVERYONE but for right now the close family members that do know are already talking about it too much and putting too much pressure on him. it is true, unless you live with this day in and day out you cannot possibly understand. he never understood before this either. the toughest thing for me to get is how last week can be better than this week!!! if time heals and he did nothing different this week then last. the fact that the progression is not in a straight line is so hard to understand and to deal with.
where did the doctors stand with you on doing too much... cognitive or physical. did they tell you to slow down, speed up... my son's doctor has him so afraid to do anything. he doesn't even want him out watching a sporting event. like i have said before this doing nothing is depressing, isolating and thus far has not made a difference that he can tell.
i am sorry if i am asking you too many questions. i am just happy to talk to someone who is going through it.