Quote:
Originally Posted by hockeymom1998
i am so happy for you that you are having a 3rd headache free day. i am so afraid to jinx anything but yay!
i hear ya.. if it works, we tell EVERYONE but for right now the close family members that do know are already talking about it too much and putting too much pressure on him. it is true, unless you live with this day in and day out you cannot possibly understand. he never understood before this either. the toughest thing for me to get is how last week can be better than this week!!! if time heals and he did nothing different this week then last. the fact that the progression is not in a straight line is so hard to understand and to deal with.
where did the doctors stand with you on doing too much... cognitive or physical. did they tell you to slow down, speed up... my son's doctor has him so afraid to do anything. he doesn't even want him out watching a sporting event. like i have said before this doing nothing is depressing, isolating and thus far has not made a difference that he can tell.
i am sorry if i am asking you too many questions. i am just happy to talk to someone who is going through it.
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Thank you so much. As most here will tell you, day-to-day or week-to-week can change dramatically and it can be difficult (sometimes impossible) to find the cause except that it happens.
My doctors wanted me doing nothing in the beginning but that was after I had already been working 7 days a week for 8 months with full blown symptoms. When they told me to stop I did, but things got worse for a while. It's a very difficult balance that I have yet to figure out. Like your son, I live in fear of triggering attacks which limits my activity.
I sent you a private message if you have more specific questions that you prefer to keep off the main forum. Happy to share my experience but that's all that I have; and there are so many others that can share theirs as well. I wish it was as simple as A causes B and C causes D, but our brains are so much more complex than that. Kids take longer to recover and I hope your son recovers fully. Like others have said, the less we (try so hard) not to worry about it, the better off we will be. Much easier said than done for me especially with some other health issues creeping up that I've never had.
A true concussion expert ,while hard to find, is vital to recovery in my humble opinion.