Originally Posted by WendyNZ

Hi everyone

I've had MP for over a year now and I share your pain The cause is unknown in my case but it's possibly related to my chronic inflammatory arthritis (an auto-immune disease). I also had a hip replacement on that side 3 years ago.

I've had all the conservative treatments including steroid injections, Neurontin etc and I also had nerve decompression surgery in May 2009. That fixed it for 3 months and then the pain slowly returned, along with the numbness. The neurosurgeon I saw today says that sometimes scar tissue from decompression surgery recompresses the nerve and then the whole thing starts over again... So I'm having the nerve (the LFCN) cut (sectioned) next month and fingers crossed it will provide a permanent solution.

The one piece of advice I have for those newly diagnosed is to speak up and keep complaining about the pain - I have had nights when I'd go to bed and cry (because it's always at it's worst for me at the end of the day).

Best wishes,
Wendy