Elder
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Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
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Elder
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
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Hi Baba
In the 80's after my DX with auto immune problems from mayo clinic. I did engage in an experimental drug program with autoimmuno therapy called DNCB.( auto immunosupressive agent) It more or less is chemo therapy in a different form. Since my issues have a genetic component, I did this in case my children would ever present with the same problems. I was in this program for 10 years, even taught and talked to second and third years medical students. This was at Columbia university medical center, only one of three in the US that tried this therapy.
While involved with the therapy, my body did stop attacking itself and I did stay healthier. The trouble was, my folks needed me too during their decline, so I left the program with regrets. I had intended to do this for a life time, just for the sake of research.
Anyway these new approaches are being tried for auto immune conditions. It is just a question on finding out where and who are doing the trials.
The treatment I had, was difficult to put it mildly, and I wonder now if it was worth doing it, as the intended results for remission didn't happen. I just developed more auto immune problems.
I do think the more people that try these therapies, the better it is for people who follow after us. I do not have regrets regarding this, as those years are on file, with the results for future generations. Maybe it will help.
Ginnie
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