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Old 10-11-2014, 10:54 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Rockthecasba121,

It is not possible for anyone here to diagnose you over the internet. Good or bad you have to rely on your Doctors for that, but you know your own body best. If you don't feel that the diagnosis from the Doctors covers what you are experiencing, then push for more tests. But be aware, Doctors have fragile egos, and the more you push the less helpfull they may be... it is a balancing act.

That said;

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A little over a month ago I was having throat tightness that seemed to be slightly effecting my swallowing.
That could be an MG symptom, or as your pcp diagnosed, a sinus infection.

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Stiff hands and eventually leg and arm weakness
.
Again possible MG symptoms... but could be many other things.

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Tingling, tightness, shakiness, and twitching that is increased by activity.
Doesn't sound like MG to me, sounds more like a nerve problem.

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Additionally, I get a mild burning sensation in the affected areas that feels like a sunburn.
Possible infection or inflammation?

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My feet sweat all the time
Doesn't sound like MG.

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and I get overheated walking to the quarter mile to my car at work
If you get out of breath, fatgued and push on, then get overheated, might be MG.

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Currently I am feeling very heavy in my neck and back, like I have a bag of sand ony shoulders.
Now that sounds like MG, but could be many other things too!

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No double vision though or drooping eyelids. My neurologist put me on neurontin which I believe is causing me vertigo and possibly the blurred vision.
Double vision and/or drooping eyelids are one of the easiest symptoms of MG for doctors to spot. But not all MG includes such obvious symptoms.

Why did the neurologist prescribe neurontin? That is generally used for neuropathic pain, which would tie in with several of the symptoms that you have. However if that was the reason and it is not working, then I think that you should go back to the neurologist and ask them to look further.

MG is an annoying condition in that it varies from person to person. That makes it hard for doctors to diagnose. It mimics many other conditions, and often it is only be excluding those other conditions that a good diagnosis is made. You have excluded Lymes and guillain barre, but if you are not getting better, then keep going back.

As I said before... If you can get the tests, then I would say do so. Peace of mind, of a definitive test result... whatever the result.. is priceless.
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AnnieB3 (10-13-2014)