My legs bear the brunt of my symptoms, but I do feel it everywhere. When I wake up in the morning, my legs feel the best they will all day, but body-wide I kind of feel like I have a finger in a low voltage electrical socket. I usually wake up on my back, and if I just roll on my side, it subsides. Is that a clue?
My problems actually started in my left leg about 30 years ago, but were stable until last year. Coincidentally or not, I also developed neck problems 30 years ago. I did a "planking challenge" last October and did something to my neck that made it lose mobility like it was stuck. It resolved after a few days, but the SFN hit me all over two weeks later.
Because MRIs show nothing, all docs proclaim my problems are not spinal. I did, however, have two months of PT on my neck because the neuro said I had obviously problems there, but it didn't help the SFN at all.
Taking R-Lipoic Acid supplements may be what has helped lessen the symptoms somewhat. I'm not as bad as I was 3 months ago, but I've been dealing with this for 11 months now.
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Originally Posted by Jon_sparky
I'm curious, is there any involvement with hands and arms? I guess it is just lower torso, if you think it is from a lumbar vertebra. My Lumbar vertibra mainly L1 is kind of munched on my x-ray, so I was thinking it might have something to do with my PN, but I also have hand and arm pain, and sometimes upper back and neck. Maybe if there was a compression of the spinal cord in the neck, it would create these symptoms of whole body SFN...
You have to keep in mind, like the journal says, they are surmising that there is a connection to diabetes, etc. my neurologist was trying to cram me into this catagory, even though I didn't have diabetes 30 years ago... Maybe it makes rm feel better to lump everyone into one group? Either that, they just label it ideopathic and move on...
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