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Old 10-13-2014, 11:09 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, Rockthecasbah. Welcome!

It could be possible that you had an adverse reaction to Augmentin. Did your doctors even consider that possibility? While many patients do not have a severe reaction, there are some who do.

http://www.rxlist.com/augmentin-drug.htm

Sometimes when doctors can't figure something out (makes them nuts, actually), they give you a label such as post viral syndrome. That's sort of funny, since you were told you had a sinus infection (implying bacterial) and were then told it was post VIRAL.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1710789/

Also, I've never known a doctor to diagnose a sinus infection based on post nasal drip! Someone usually has some sort of colored drainage and other symptoms, such as pain over the affected sinus cavity.

Sinus infections are thought to be caused by undiscovered food allergies. Mayo found a connection between sinus infections and fungus. Do you eat a lot of dairy or foods containing yeast?

http://www.sciencedaily.com/releases...0910080344.htm

If you had Guillain-Barre syndrome, and you are still having symptoms of it, they should be giving further treatment. Did you receive plasmapheresis for it? IVIG?

http://www.mayoclinic.org/diseases-c...t/con-20025832

Have you ever had your vitamin B12 checked? Thyroid? Fatigue all day can be caused by a number of things, including a B12 deficiency, hypothyroidism, lupus, and many other things!!!

If you had Guillain-Barre, there are some vaccines you should not have.

http://www.cdc.gov/vaccines/vpd-vac/should-not-vacc.htm

There's really no way you can say that you don't have double vision unless you see a neuro-ophthalmologist. They have very specific visual tests that can show if you have DV or not. Double vision is often mistaken for blurry vision. If you close one eye, does your blurry vision become better? Do you have astigmatism?

Neurontin has been shown to exacerbate MG and, in a few cases, to cause it. It might be more important to know exactly what is causing the pain in order to have the appropriate treatment. Have you tried plain old acetaminophen?

Due to the speckled titer, I would highly recommend that you find a very good rheumatologist. Some people with lupus have this particular titer. If you have lupus, that's nothing to mess with. You'll find that many doctors label patients with BS before they are eventually diagnosed with a concrete disease. Diseases such as lupus are considered "invisible" (though not by good, creative diagnosticians!) and the diagnostic process might go on for months or longer.

https://www.rheumatology.org/Practic...ibodies_(ANA)/

If it's possible that you do have lupus, pain is caused by inflammation. That would not show up on an EMG/NCS.

I do not think you should accept that you're "fine" when you have so many symptoms. I really believe the best place to begin is a rheumatologist. They might want to redo the Lyme test as well. You need a thorough evaluation from ONE doctor, a followup visit to ask more questions, and some kind of answer to what is going on (it could be more than one thing).

Do you have a good internist? They can run some basic tests or refer you to a rheumatologist.

It can be hard to figure out what's going on with a patient, but that's often more of an excuse due to a lack of time or desire to spend the effort or time to help them. You could be a victim of lazy doctoring. You need a doctor who will help you figure out exactly what is going on! I hope you can find some good help!

Annie
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