Pamelajune and Diandra thanks
Pamela..the skin does not burn, the actual spine feels like its burning, or something, cant figure out the word for it.
Diandra, I will ask about that medication as I have read it several times helping people.
the pain doctor In new York is the one who gave me the really bad combo and got me more sick. but I do know very good doctors now and have to see them again.
I am beginning to accept at some level that this pain is permanent barring some great discovery.
untreated lyme disease symptoms sound close to the things that bother me the most. I guess it's all central nervous system damage.
I guess we must keep moving forward trying to be as comfortable as possible.