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Old 10-14-2014, 08:21 AM
Rockthecasbah121 Rockthecasbah121 is offline
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Join Date: Oct 2014
Posts: 19
8 yr Member
Rockthecasbah121 Rockthecasbah121 is offline
Junior Member
 
Join Date: Oct 2014
Posts: 19
8 yr Member
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Thanks for the response Annie. I am not happy with the post viral diagnosis, as I believe it is just to get me to go away until a more obvious symptom occurs. I haven't heard of people having this bad of a reaction to antibiotics and have never had issues in the past with one. I do agree that being prescribed augmentin for a sinus infection does not make sense, since 90% of them are virus based. I do not think my initial throat symtpoms were a sinus infection. I believe they were the first symtpom of whatever larger issue is going on.

I'm currently not receiving any treatment for GBS nor did I receive any type of treatment prior. The neurontin was prescribed for nerve pain before my EMG/NCS results and the neurologist instructed me to continue taking them anyway after he changed his diagnosis to post viral. I believe it is the neurontin causing me vertigo, as I did not have it prior to starting the medication.

I had a bunch of vitamin levels checked and my b12 was at the low end so I am taking a supplement and my vitamin D was something like 26 when the recommended range is 30-100. I am now taking 4000 units a day with magnesium. None of my doctos seemed worried about the 1:80 speckled titer. They also ran a blood test to check for markers of inflammation which came back normal. I don't really fit the demographics for Lupus, but I will look in to it further.

As for my vision, if I wear my glasses that are about 2 years old, my vision seems perfect to me. Without them, things in the distance are blurry and do not improve when closing one eye. I do have astigmatism, but I never remember which eye it is.

Quote:
Originally Posted by AnnieB3 View Post
Hi, Rockthecasbah. Welcome!

It could be possible that you had an adverse reaction to Augmentin. Did your doctors even consider that possibility? While many patients do not have a severe reaction, there are some who do.


Sometimes when doctors can't figure something out (makes them nuts, actually), they give you a label such as post viral syndrome. That's sort of funny, since you were told you had a sinus infection (implying bacterial) and were then told it was post VIRAL.



Also, I've never known a doctor to diagnose a sinus infection based on post nasal drip! Someone usually has some sort of colored drainage and other symptoms, such as pain over the affected sinus cavity.

Sinus infections are thought to be caused by undiscovered food allergies. Mayo found a connection between sinus infections and fungus. Do you eat a lot of dairy or foods containing yeast?



If you had Guillain-Barre syndrome, and you are still having symptoms of it, they should be giving further treatment. Did you receive plasmapheresis for it? IVIG?



Have you ever had your vitamin B12 checked? Thyroid? Fatigue all day can be caused by a number of things, including a B12 deficiency, hypothyroidism, lupus, and many other things!!!

If you had Guillain-Barre, there are some vaccines you should not have.



There's really no way you can say that you don't have double vision unless you see a neuro-ophthalmologist. They have very specific visual tests that can show if you have DV or not. Double vision is often mistaken for blurry vision. If you close one eye, does your blurry vision become better? Do you have astigmatism?

Neurontin has been shown to exacerbate MG and, in a few cases, to cause it. It might be more important to know exactly what is causing the pain in order to have the appropriate treatment. Have you tried plain old acetaminophen?

Due to the speckled titer, I would highly recommend that you find a very good rheumatologist. Some people with lupus have this particular titer. If you have lupus, that's nothing to mess with. You'll find that many doctors label patients with BS before they are eventually diagnosed with a concrete disease. Diseases such as lupus are considered "invisible" (though not by good, creative diagnosticians!) and the diagnostic process might go on for months or longer.



If it's possible that you do have lupus, pain is caused by inflammation. That would not show up on an EMG/NCS.

I do not think you should accept that you're "fine" when you have so many symptoms. I really believe the best place to begin is a rheumatologist. They might want to redo the Lyme test as well. You need a thorough evaluation from ONE doctor, a followup visit to ask more questions, and some kind of answer to what is going on (it could be more than one thing).

Do you have a good internist? They can run some basic tests or refer you to a rheumatologist.

It can be hard to figure out what's going on with a patient, but that's often more of an excuse due to a lack of time or desire to spend the effort or time to help them. You could be a victim of lazy doctoring. You need a doctor who will help you figure out exactly what is going on! I hope you can find some good help!

Annie
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"Thanks for this!" says:
AnnieB3 (10-14-2014)