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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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It sounds like your goal of trying to get a clearer diagnosis and course of treatment is a good one...and I would keep the focus on that and on what your goals for treatment are.
It doesn't really sound like CRPS to me...but since there is no such thing as a textbook case of CRPS that doesn't mean it isn't. To me the biggest thing missing is the excruciating pain...pain can present itself in different ways with different triggers...but it's one of the key symptoms of the condition. I know when I read about RSD/CRPS...I had no doubt in my mind that's what I had...all these random puzzle pieces suddenly made sense when no other explanation did.
So I would keep your focus on getting a diagnosis and then proceeding with treatment. I will note that it is good for them to proceed with caution so they don't cause more damage if it IS CRPS...so don't be too quick to jump on something else if the treatments are something that should be avoided with CRPS unless your dr is very sure it's the other thing.
Good luck at your appointment and take care!
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