Thread: MG
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Old 10-15-2014, 01:12 PM
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cait24 cait24 is offline
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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I would discuss with your neuro the possibility of plasmapharesis. Try this website, it has a lot of good info on MG. http://www.mayoclinic.org/diseases-c...s/con-20027124. I always suggest to new MG patient that they see a neuromuscular specialist at a large teaching hospital. They are up on the latest protocols and treatment for MG.

Prednisone has its good and bad side. The good side is that most MG improves very fast, especially breathing issues on prednisone. There are a lot of bad side effect being on prednisone long term. Different people tolerate it differently. Some MGers are on it for years and tolerate it well, some can not tolerate it all.

The first time I was on prednisone I tolerated it very well and thought it was a wonder drug. The second time I had the exact opposite experience and had every side effect in the book.

Be careful of the swallowing issues. Can he eat and get his pills down? Is he having breathing issues.

Prednisone is fast acting. There are other immunosuppressant that take longer to work and many MGers start on both at the same time, such as cellcept and imuran. Once they kick in they are weaned off prednisone.

Let us know how he does. Good luck
kathie
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