Thank you all so much for making me feel so welcome. I already feel a bit better just having got some stuff off my chest.

So the neuro guy did a bunch of simple tests and doesn't think it is within his sphere of help. he's pointing towards possible CRPS. This doesn't seem like a very well understood condition at the moment and I'm reading of people having trouble with getting help and support with it.

Still a long road ahead it seems.
Thanks again folks. maybe see some of you in the other boards.