Quote:
Originally Posted by HarryDresden
Three doctors, two of which are CRPS specialists have diagnosed me with CRPS. The doctor i’m currently seeing Dr. A (as i refer to him in other posts), made his diagnosis today. I told him my pain had decreased about 90% ,though in hindsight this was a bit of an exaggeration as some things such as walking and pain in the twos are 90% better, since the original trauma to the foot, but that symptoms had come, go and changed. For instance, the tingling, warmth, redness, and electric tingles in the foot weren’t present in the first couple months, but have become frequent (daily) but are relatively unpainful (1-2/10). So to re-iterate my symptoms orginal were painful walking, throbbing in the toe and how their warmth, redness, tingling, electric tingles.
Dr. A expressed their was nothing more he thought worth the risk doing at this time. That he had seen CRPS cases that resolved themselves and the patient was healed. That much of the literature focuses on the worse outcomes. He wasn’t willing to give a timeline for healing or a probability, but was hopeful that mine would resolve itself.
This optimism mirrors Dr. O, the orthopedist who first diagnosed me with CRPS and gave me a nerve block. It also correlates with the findings of a population based study (though their is some controversy surrounding this study), that there are many (maybe the majority) people diagnosed with CRPS that see resolution.
I understand that many on this forum are likely to be long time sufferers of CRPS. That many of you likely have much worse symptoms then mine. I’m hoping that if anyone has any advice concerning my history, diagnosis, treatments, diets, the doctors advice, prognosis, spreading, etc.. they would share it.
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I'm one of the fortunate ones whose CRPS resolved (Jesika don't I count???
). My basic advice for your particular situation (which you did a heck of a job detailing BTW) is:
1) mirror therapy coupled with ROM movement - 10 mins 5x daily. See where you are in 2 weeks and go from there.
2) massage/desensitization techniques (can be combined with mirror therapy). Actually - desensitization is not critical in your case based on the mildness of your symptoms.
3) 50/50 DMSO/vegetable glycerin applied to the area 3x daily. I made my own and can provide a link to purchase quality 100% DMSO if interested. (no monetary benefit to me lol
)
4) NAC 600mg 3x daily, or a boosted Vitamin C regimen, or grape seed extract (not sure on dosages there having not used it myself but have read studies and anecdotal evidence that it is a highly potent antioxidant.)
5) Take a look at your overall diet and limit caffeine, alcohol, and inflammatory foods. You will know which foods are inflammatory by how your foot reacts if you pay attention.
6) Take a look at your overall environment and pay attention to where the most stress arises. Seek out and establish a positive environment for yourself. Do stuff you love. Get out in nature. Play your favorite uplifiting music. Do it for you. Ironically, being selfish to heal yourself is the most selfless thing you can do. Live your life and revel in it dude.
7) Now that you know the worst that can happen having been on this forum and incessantly researching multiple studies, let it all go and allow yourself to heal up.