And if you have a family history they will assume it is CMT. Unfortunately in that case what the doctor said is true. I have had two neurologists dismiss me with the same news, one at Johns Hopkins where the first sent me for a second opinion.

I had numbness in my feet and pains in my legs for years but the symptoms in my hands were more bothersome, with weakness and tingling that woke me every night.

My first neurologist was very thorough in looking for a treatable cause before she released me. It is unconscionable to overlook anything.

Second and even third opinions are important but it is also important to accept what is, if you do have CMT.