Thank you for sharing this Susanne. Some of us have more support than others but even with it, there is a lonely and isolating component of NP.

I posted this thread to give others a laugh, maybe show them how fortunate they are if they have support and to vent my own frustrations with my own family members who throw their hands up and dismiss it because there is no fix. You cannot simply pop two aspirin and go about your life. Many of us are doing everything we can, exploring every option to improve however we are still stuck and support and compassion from others is extremely beneficial, if you can get it.