Quote:
Originally Posted by Electron
Dear sir,
I'm sorry you find yourself in this situation. It's not fun. Why do you think the H1N1 vaccine caused your PN? Do you know of other cases where this happened? Remember that because two things happen at about the same time does not mean that one caused the other.
I am concerned with you linking your identity with the H1N1 vaccine so strongly that you made it your username. I think you need to let that go, at least for yourself. If you want to be an activist against H1N1 vaccine, I could see that, but I don't see that it matters whether it caused your PN. Possibly unless there is still a substance from that vaccine lingering in your body. A person can get so obsessed with a notion that it blocks progress.
You need to find a competent clinic that is versed in the couple hundred causes of PN, such as Mayo, Cleveland Clinic, John Hayes at NeuropathyDr, & there are others. Have them do their best to find a cause. A general neurologist does not know how to do this. Then you can know you did what you could in this respect.
I like your diet, except I believe you should eliminate animal products all together. Many studies show that they increase risk of chronic disease. You said "My diet consists of 90 percent foods in their natural state," for which I commend you very much, probably better than what I do. What is the other 10%? For example if it were Lucky Charms & corn oil then I am concerned. I have been making a concerted effort to eat a good diet for several years now and I believe it has slowed greatly the progress of the PN. So keep it up. Many books explaining the benefits.
Many of your supplements look great. Remember that not all brands are the same. Sometimes it's not best to get the cheapest. I have found that alpha-lipoic acid and evening primrose oil reduce my pain levels. Possibly the methylcobalamin as well.
Exercise is very important, so don't forget that.
Ron
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The neuropathy began within a month of receiving the H1N1 vaccine. It was not immediate and it was only years later that I put these two things together, but the internet is full of tales that are similar to that of my own.
I am having tremendous difficulty letting go and forgiving myself.
I had been going to Vanderbilt University for several years before last year I gave up as nothing was going on except a physical exam and medication renewals. I am getting ready to see another neurologist who has a good reputation in the community. I will hope for the best. I just can't afford to travel out of state to somewhere like Cleveland Clinic.
When I say 90% in relation to food, the other 10% consists primarily of things like crackers and pastas, all of which are organic. I am obsessed with organic and Non-GMO.
If you have any other supplement recommendations of things you are taking I would love to hear them. Perhaps you could recommend some superior vendors. I generally use vitacost and bulksupplements.com.