[QUOTE=AussieDebbie;1104176]Much like MrsD with her Angry Birds, I lose myself in an online fantasy world game. Killing dragons and such makes the hours fly buy, and before I know it the afternoon has been and gone, all the while my focus on the game has taken my mind off the pain, completely!

Late at night seems to be the most painful time for me. Every night I lay here next to hubby as he snores, and I research neuropathy, gluten, etc. in an effort to educate myself. I read these forums, which helps a lot. Knowing I'm in good company on this journey certainly helps.

For me, acceptance of my Doctor's word is defeatist.

I've accepted whatever is going on with my body because I want to take control of it. I will get to the bottom of what is causing this pain, and I will rid myself of it if that's the last thing I do. No Doctor is going to give up, throw pain meds at me and expect me to lay down and take it. THAT is why I've 'accepted' it. I've excepted there is something wrong, but I will never accept that it's won and there is no hope.

Hope that makes sense, I often struggle to get my message across thanks to medications.

If kicking stuff, screaming at stuff, and swearing helps, then I see nothing wrong with that. Pent up anger is poison to your body, let it out, loudly and often. Just take it out on teddy bears and pillows, not other living beings.

I understand your anger toward people who live pain free. Why were we chosen to endure this torture? I sometimes wish people around me could experience my pain for just an hour or so, long enough for them to understand what I'm going through. I mourn for my life the way it was. It's not fair! It sux!

I disappear into a fantasy world in a game. Others meditate. Others scream and beat up pillows. Whatever you need to do in order to detox from that anger is fine, so long as its working for you.
Hi AussieDebbie,
How are you doing? I was just wondering. Do you have a dx of Neuropathy? You sound like your having Neuropathic pain. I read in another one of your posts that your B 12 was "low". Does your Doc think that is the cause of your symptoms. What kind of symptoms are you having? And are you taking any medications (besides supplements) for your pain? I suffer with I-SFN (Idiopathic small fiber neuropathy). The Doctors, after 3 years still can not find a cause. I take 275 mgs Lyrica,which is not helping with all the pain. My B12 was low (375) 3 years ago, when my symptoms started ( tingling in my calves and burning under my feet). I thought the "low" B12 level was the cause of my symptoms, so I took 5000 mcg of Methl-B12 a day for many months. My B12 went up to over 1500, but unfortunately it didn't make a difference in my pain. I love how you explain how you deal with your pain. The only thing that works for me, is I have to go somewhere private (at home) and cry it out. Nothing else I do can "distract" me from this dreaded pain. I Hope your doing ok!