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Originally Posted by AussieDebbie
I think one reason our friends and family may struggle to understand our illness is because there are no outward signs. We look perfectly normal/healthy. They look at us and don't see the pain inside us.
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TRUE!!!
Quote:
Originally Posted by AussieDebbie
Also, because our pain is invisible, perhaps we try more so to inform others that we are indeed sick, and unable to do some things. This is true for me. I'm constantly having to remind my family that I'm in pain.
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Same with me.
Quote:
Originally Posted by AussieDebbie
Just last week my mother suggested a trip to the shopping mall, a huge multi layer, hard floored torture chamber!
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LOL (sorry)
Quote:
Originally Posted by AussieDebbie
It's this having to remind them over and over that forces me to talk about my illness more than I would otherwise. Perhaps as time goes on the people in my life will remember, then I can stop constantly reminding them.
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I also experience this. People around me invite me to do things and I have to say "Thanks but I can't". I can't plan anything without the right to cancel, even at the last minute. I actually tried to keep my PN a secret but that has become very difficult.
Quote:
Originally Posted by AussieDebbie
They are not educated in the art of pain empathy. It wasn't that long ago you and I were just like them, oblivious to chronic pain.
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I also need to remind myself of this. Thanks
