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Old 10-25-2014, 09:43 PM
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PamelaJune PamelaJune is offline
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Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default All to familiar story

Gosh I'm really saddened to read what you are going through, probably because I can totally relate to your situation.
I don't know the answer for you but for me, our partners I think become weary of our constant coming and going from medical appointments, reviews and surgical procedures and their only coping mechanism is to become insensitive to our situation. I have recently had another procedure that was fairly invasive and caused far more pain than I anticipated and on top of that, I'm not allowed to do anything for 13 weeks. It's to help me manage my pain, not cure it. For the first time ever in any of my surgical procedures he has finally gotten the point, I need to take the time to recover from the procedure and then see how I go about getting on with the rest of our lives. The last two years have been hideous and I have become a housebound prisoner, I'm determined to see these 13 weeks out and do nothing at all to risk a good recovery and the potential to be able to return to the workplace and live a life outside of these walls.
Vent away on here, talk to us, we are all in the same boat. Hopefully you will be able to find different words and ways to explain to your husband in words he will understand that you are not alone in your journey to recovery, he plays a crucial part by being supportive and encouraging. It can happen trust me, mine went from being indifferent and even failing to turn up at the hospital on more than one occasion to being the rock I couldn't do without.
Hang in there, talk to your GP, do all your physio exercises and discuss getting a referral to a pain management specialist and a psychologist. I did and it's been the best thing for me. The pysch should also be willing to talk to your husband to help him to understand. I'm just joining a new wellness group this week as a part of my recovery, the group has a physio, pysch and nutritionist and they all work together with the PM specialist for an overall outcome to help me best manage my pain and not just rely on pain meds and the SCS unit. I'm feeling very nervous but I am also looking forward to having different and maybe fresh ideas from this new group.
Some threads get more people traffic, try the chronic pain forum as well.
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I can still remember what life was like before pain became my life long companion
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"Thanks for this!" says:
Puppykat (10-31-2014)