Quote:
Originally Posted by pogo
If you have slit ventricles, sometimes programming it higher can help. My daughter has slit ventricles/codman+a low flow valve (replaced the asd, it didn't do enough) and has been over draining as her pressures have been going up over time (went from 3cm on just a codman to equivalent to 21cm, but with the 2 valves think it is 13cm, don't have my notes with me). Going higher did stop some problems with double vision.
But also thought double vision could be transient blockages, it is just weird.
|
Hi,
My neurosurgeon tried changing my pressure from 1.0 to 1.5 but that only made my headaches worse. (Metrotonic Strata Valve; I apparently have slit ventricles). Turning up the pressure only made me get unsteady on my feet as well as all my other symptoms. None of them got better or worse except the headaches. My symptoms; vice like headaches that are also pounding and are all over head and 24/7 never go away, double vision, nausea & vomiting, reservoir pain, tubing pain, unsteady on feet, noise sensitivity and headaches don't respond to pain medication.
All suggestions will be considered, I just need answers xo
Thank you