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Old 10-30-2014, 09:46 PM
Jon_sparky Jon_sparky is offline
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Join Date: Jul 2013
Posts: 145
10 yr Member
Jon_sparky Jon_sparky is offline
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Join Date: Jul 2013
Posts: 145
10 yr Member
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Quote:
Originally Posted by en bloc View Post
Plaquenil may help with the fatigue and sometimes joint pain related to autoimmune disease, but not nerve pain. There is some research that indicates it can slow progression of some autoimmune processes, but it's hard to prove or track this when so little is known about the progression of AI diseases to begin with. Keep in mind that it take a good 6 months or so to start working. Make sure to get a base line ophthalmologist evaluation before starting the Plaquenil and then EVERY 6-12 months after that.

I'm glad you are getting some relief with the Cymbalta.

The skin biopsy can be repeated down the road if your continue to get worse...and maybe the borderline level will have changed...allowing you to qualify for IVIG or another treatment.
I went for my eye test yesterday, the Optimologist told me that the side effect of retina detachment takes 5 years to manifest, that it is accumlative. She called the 3 month test a benchmark, she has been in the field for probably close to 40 years. She said that the Rheumy's are over reacting, but a lot want a 6 month exam, to cover themselves. Anyway, passed the eye test, but still have to do the Field eye test in December, to complete it. She told me that my blurred vision was not coming from Planquil, or from any problem with my eyes, so maybe a manifestation of SLE also... I always thought the blurred vision was related to low blood sugar, but I have tested my glucose during the episode and it is normal. I also get blurred vision when I am have a allergic reaction to the new carpet in my office...
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