Wow, that seems like alot of ketamine treatments! I'm looking into getting a 7-day in-patient treatment in Winston-Salem, NC hopefully soon because I'm in so much pain, i would rather die than live like this, but I was hoping my pain would be much better, ideally go into remission. I've never heard of anyone having to have the in-patient that frequently with out-patient treatments on top of it! Yikes!
So this leaves me with alot of questions, but for now, I'll focus on two main ones. 1) Does your insurance cover all of these treatments because I know they aren't cheap and I'm not even sure yet if my insurance is going to cover this one yet. 2) If your daughter needs on-going treatments and repeated treatments so frequently, is it really working like it should and will they eventually get to a point where they are no longer needed? I know there's no way to really know that. But I'm wondering if the doctors have given you any prognosis/hope? My heart goes out to you and your daughter.
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Originally Posted by CatPutsche
I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.
I hope this helps you!!! :grouphug
Catherine
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