Hi,
I just read your post regarding the multiple in-patient and out-patient treatments your daughter has had. I have never heard of anyone who has had to have so many that frequently. Is it that her CRPS is that bad and the treatments just don't last long? I'm considering a 7-day in-patient treatment in Winston Salem, NC. I was hoping the one would do the trick. However, my pain is extremely bad. I have a question for you regarding insurance, especially since your daughter has so many treatments. What kind of insurance do you have and does it cover repeated treatments? I hope she's doing well. My prayers are with you, your daughter, and your family.
Thanks,
Denise
Quote:
Originally Posted by CatPutsche
Hi!
I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.
I hope this helps you!!! :grouphug
Catherine
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