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Old 06-08-2007, 06:19 PM
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Debby Debby is offline
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Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
Debby Debby is offline
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Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
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I have not had a movement disorder Dx either but I dont' want anymore labels. The 3 I do have are quite enuf thank you very much. *LOL*

But I do the twitch thingy off & on. And I have totally perfect reflexes when any doc does that test on me too. So the answer to your question is absolutely YES> Mostly first thing in the morning. And it is worse when I am physically exhausted. Which believe it or not does happen to me now & then. We went camping last weekend & just trying to come back from that has been hard, cause on top of just getting back late afternoon on Monday, I had an LSB procedure done on Wed. And those drugs do a job on me anymore. Today I had to clean up my house I felt like I was wading thru ick on my floors. It rained Tuesday & we have this bush that blooms little pink flowers then seeds & it tracks into the house really really badly. So I had to clean it up. I have RSD in both feet & it tries to take hold in my hands too but SGB's have been keeping it at bay from taking full hold. This is my 2nd round of LSB's altho the firwst round was back in 04. Due to back & major back surgery I haven't been able to do LSB's. Then the damn doc hit the bone & I about died (not really but wanted too) during the procedure from that pain. It was bad. But I do have to say that my foot didn't hurt for 2.5 days. They NEVER worked that long when I had them done back in 04.

Sorry to dump on ya & hijack your post like that. But yes I twitch & jerk bad enuf sometimes in my hands to spill drinks even. And sometimes my leg kicks out from a jerk or twitch. My Doc calls my movements Dystonia. It just happens so I don't worry about it. What bothers me MORE is when my body goes into the "Fight or Flight" mode & won't come out of for hours at a time. Now that wears me into a frazzled state of exhaustion quicker than anything else can & then I really do the the twitch/jerk problems.

Hope this helps to know you not alone................I am sort wondering why you would want another DX of Movement Disorder???? It is just one of the myriad symptoms of having RSD as far as I am concerned.

TTFN (Ta Ta For Now)

DebbyV

Last edited by Debby; 06-08-2007 at 06:21 PM. Reason: Forgot somehting *LOL* what is new????
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