Thank you for your words of support Annie. I have gained a lot of understanding about MG from your posts. I got into my pulmonologist tody and he says he doesn't think it is MG because my ABG showed low CO2 levels from hyperventilation. He said MG patients show high CO2 because they can't get the air cleared out of the lungs. I thought hyperventilation was also a possible problem in crisis.
The doctor was able to push the neurologist for an appointment next week but he couldn't offer me any treatment because it may mask symptoms and interfere with tests that the neurologist might order. I am dealing with the news bu am discouraged.
For now I am bedridden and if I get that bad again I will go to a different hospital where we have friends with a little pull. My super awesome husband is being allowed to take early lay off from work so he can be home with me and our 8 (yes 8 amazing kids).