Hi
I'm going to reply to this thread rather than one of your other ones...
Thoracic outlet syndrome is rare and getting the best treatment is harder than in the US where most people seem to be able to get to see someone specific. The Royal London is a good hospital and 10/year is actually a lot for UK.
I had my original surgery at Guys and St Thomas' with someone called Prof Burnand, a vascular surgeon who has now retired. If you search the forum, you'll find old posts from me in 2008 all about it but basically had arterial and neurogenic TOS so had to go ahead with surgery as no pulse in left arm. Unfortunately 6 years down the line, I have now developed venous TOS probably due to more scar tissue and that's why I now need to look at more surgery. Because I've already had my first rib removed and because such a long stretch of vein is damaged, my case is now very complicated. It's been discussed in both Cambridge (where I'm now based) and in London but none of the vascular surgeons are keen on operating because I've already had the normal first rib resection. Eventually the decisoin has been made to refer me jointly to Professor Julian Scott and PRofessor Simon Kay (they did UK first hand transplant so not TOS specialists but would be prepared to operatie in my unusual situation where they will hopefully try to disentangle scar tissue from my brachial plexus as well as deal with the vein).
However, for a first presentation of TOS and for someone London based (I'm guessing you must be or otherwise in the area served by Royal London) the two hospitals that my case was discussed with again this time are:
Guys and St Thomas' still has a specialist vascular service for TOS http://www.guysandstthomas.nhs.uk/ou...ecialties.aspx but one of the best units in London geared up for this is at St George's. They have specialist service dealing with upper limb DVT and then TOS surgery so I think you should at least explore their opinion. I've heard good things about Mr Ian Loftus https://www.stgeorges.nhs.uk/people/mr-ian-loftus/ who I suspect you'll find will also give you a private opinion.
https://www.stgeorges.nhs.uk/service...tlet-syndrome/
Hope this helps
Jenny
PS would check out FB page too if you are on FB as may get other recommendations