I'm Roxie and I just found this site.
I have just been diagnosed with Neuropathy Myopathy by my Rheumatologist after having a (very painful) nerve/muscle biopsy. I have been having severe pain in my arms, shoulders, hands, legs and hips since early Feb. of this year.
I've had MANY MRI's, Cat Scans and blood work that was to no avail other than to show I have low Carnatine level in my system...so I'm taking supplements now. I'm not Diabetic. My Rheum. is now trying to narrow down what I have through blood work. I'm taking Lyrica for the nerve pain though it's not working real well. I've tried Neurontin and it didn't work well either. My doctor mentioned a weekly IV that might be an option but after reading about it, it doesn't sound like a good option. (has anyone tried that??) I'd love to hear from anyone with ideas, suggestions etc......
I also suffer from Barrett's Esophagus, Interstatial Cystitis and Irritable Bowel Syndrome and Osteo Arthritis.
Thanks! Roxie