Quote:
Originally Posted by zookester
As far as CRPS goes - you really haven't given much info except the bulging veins so if that is all then no - I doubt CRPS but.. then again I'm not a doctor just another CRPS II patient.
However - I also had bilateral Vascular and Neurogenic TOS prior to CRPS II so I am a familiar with that through personal experience. I had both first rib resection and neurolysis done within 20 days of each other by a fantastic doctor in Seattle (Dr. Mark Ombrellaro) and have had no further symptoms since them moment I woke from surgery. I am forever grateful for his quick and accurate diagnosis and expert surgical skills.
It does sound more like V- TOS than CRPS from what little you have posted. Do your arms and hands turn white/cold when raised at keyboard or steering wheel level? And then when you lower them they quickly turn bright red with the feeling of blood rushing back into them? The deep aching could come from lack of blood flow as this will impair bone resorption and potentially cause bone pain and changes within.
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Thanks for sharing your experience. I've come across 2 other TOS patients who also had a successful outcome w/ Dr Ombrellaro.
As for my bilatral hand symptoms...
I do NOT have: swelling, burning pain, sensitivity to touch, color changes, abnormal sweating, stiffness, changes to skin or nails, or an abnormal triphasic bone scan.
I do have:
-- severe aching pain
-- periodic bulging, distended veins on the tops of my hands
-- extreme hand coldness w/ any aerobic activity, including just brisk walking. After such exercise, hand pain symptoms are greatly exacerbated later that evening and for the next few days. (In bed for roughly 3 days w/ round the clock opiods.)
Arterial blood flow through the hand is normal at baseline and also immediately post-exercise when hands are ICE -cold. (was tested) Docs are saying that the sympathetic nervous system is activated on exercise, and it's cutting the blood flow to skin cells only (explaining coldness) and it's the sympathetic nervous system that's also responsible for the increased pain flares post exercise as well has the constant ache.
Personally, I think it's a local venous return issue that is exacerbated by increased blood flow, but no doc is willing to test this. They just tell me to see a CRPS specialist.
Any thoughts??