This is day 9 since my initial "crisis". I have good times when I can walk and talk for short periods and I have really bad times when I struggle to breathe and my legs barely work at all. We went to a different ER and got the same treatment. When we realized we were going to again be sent home, my husband asked the tech. what would happen if we wouldn't leave after discharge and be said they would call the cops and we would both be escorted out in hand cuffs!
This is about the same time I started having uncontrollable convulsions. It was like having a siezure except I was wide awake. Very painful.(doc said they were caused by the high CO2) Finally after much persuasion and reading off Annie's quote about why hyoerventilation is a crisis, he at least called a neuro for a consult. They gave me mstonin, monitored me awhile and sent me home. I wasn't sure if it helped but my breathing was better a little. The next morning my bulldog husband wheeled me into the neurologists office and told them how I was deterioratin and couldn't wait 5 days for an apt. The receptionist tried twice but docs said they couldn't fit me in. So he turns to the patients waiting and asked if anyone would switch appointments. We were quickly ushered to a back room cuz we were making a scene, but the nurse and "manager" evaluated me and got the doc to see me. She ran a gazillion lab tests and nerve and muscle tests and MRI's. they say it could take 2 weeks to get insurance approval for the MRI so now we wait. The nerve and muscle tests were normal. Starting to think this isn't MG. don't know. At this point I would be happy to be treated for depression/anxiety. I still may not be able to breath, but at least I would be happy about it!