Hi Craig!

Great to see you! Been thinking about you since we are both in the same limboland area, i.e. same age, symptoms with brain atrophy, no lesions...
Do you suppose we are part of the 5% of MS patients who don't have lesions? Don't know about you, but my symptoms are real enough and they aren't going away.

Glad you had such a good vacation. I will be heading south as a snowbird in about 4 weeks for a week on the beach too.

There are a few articles posted about the loss of neurons that might interest you, although you may have seen them already at the other forum.

When do you see the neuro for the new investigations? You had mentioned it at BT before it crashed. If you do get a dx, please let me know if you are comfortable sharing that info, it might help me a bit.

I had the colonoscopy from he**. Should have bought a lottery ticket that day. The odds of hypoxia are something like 1%. I was hypoxic and they had to abort. However, she had already run out of scope at a the redundant part of the hepatic flexure. 4/5 people sleep through it. I was wide awake. The odds of colonoscopy failure are 17%. Three out of three. The barium enema which they do if the colonoscopy fails as an immediate procedure triggered the symptoms of vomiting, vasovagal response and incontinence. Lovely fun.

Three times over the past year and a half I have asked my FP for a gastro referral. Three times he has given me the same answer - "why - what's he going to do for you". I asked my MS neuro, she was quite happy to refer me. I think it have a motility problem. It makes sense since I have a neurogenic bladder. And it's getting worse, not better. My FP is right, the gastro probably can't do anything except give me a dx. I'll take that any day. If it's a neurogenic bowel then maybe I'll be one step closer to an MS dx. At least it will be documented.

Why don't doctors listen????

Great to see you again.