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Member
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Join Date: Sep 2006
Location: Australia
Posts: 660
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Member
Join Date: Sep 2006
Location: Australia
Posts: 660
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I would love to offer you a 'good news story' on this one, but Fampyra was DEFINITELY NOT my friend.
My boss sent me home from work after I admitted that there were two (sometimes more) versions of her floating through my vision in a cyclical fashion.
I felt totally spaced out, and a week later, I felt I was so close to fitting I explained to my learner driver daughter what she should do if I had a seizure - during her first long distance drive - while she was out of phone service - many, many miles from anything.
This was after I nearly soiled myself in epic proportions at a busy shopping centre - thankfully I made it with moments to spare.
So, even after my doc offered me a much reduced dose, I trialled but declined when it was still bad.
Having said that, I know others on it that think it's great - so these are just my experiences.
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Lyn .
Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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