As Jo said, there is a lot of controversy in medicine about TOS, so it's important to make sure any doc you bring on board (esp. a new neurologist) txs this disorder. (Some even deny its existence, believe it or not!) Ask your pain management doc about TOS as well; s/he may want to have you consult with a vascular surgeon to confirm TOS as a dx (doesn't mean you have to have surgery, by the way!).

Some of your sxs do sound like TOS, DixieDarling, and getting you on the right kind of tx plan could make all the difference for you. Unfortunately, there is no "gold standard" test to determine whether this is the correct dx, but there are several provocative maneuvers a knowledgeable physician can put you through clinically which can be telling (putting your arms in certain positions to see if you lose your radial pulse, for example), as well as something called a "scalene block" which, if it provides relief from your pain, is a positive sign of TOS as well.

Don't want to overwhelm you right now (or ever!), maybe just do some reading on the TOS forum for now and see if anything resonates with you. If you'd like to talk sometime, send me a PM and I'd be happy to give you my phone number. I have been right where you are!