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Originally Posted by Sea Pines 50
As Jo said, there is a lot of controversy in medicine about TOS, so it's important to make sure any doc you bring on board (esp. a new neurologist) txs this disorder. (Some even deny its existence, believe it or not!) Ask your pain management doc about TOS as well; s/he may want to have you consult with a vascular surgeon to confirm TOS as a dx (doesn't mean you have to have surgery, by the way!).
Some of your sxs do sound like TOS, DixieDarling, and getting you on the right kind of tx plan could make all the difference for you. Unfortunately, there is no "gold standard" test to determine whether this is the correct dx, but there are several provocative maneuvers a knowledgeable physician can put you through clinically which can be telling (putting your arms in certain positions to see if you lose your radial pulse, for example), as well as something called a "scalene block" which, if it provides relief from your pain, is a positive sign of TOS as well.
Don't want to overwhelm you right now (or ever!), maybe just do some reading on the TOS forum for now and see if anything resonates with you. If you'd like to talk sometime, send me a PM and I'd be happy to give you my phone number. I have been right where you are!
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Hi, Allison Thanks. I did go today for pain medicine refills and the pain management doctor told me to see a surgeon on referral. Well this threw me for a loop…wasn’t expecting that at all.
Looking at my records for his notes, he has the following: moderate-severe left median neuropathy, subacute bilateral ulnar neuritis, chronic pain syndrome. Referral to Dr. XXXXX for definitive left median neuropathy (affecting pronator teres and APB), and ulnar neuropathic ssx bilaterally.
I have zero clues as to what all that means. If you know, I’d appreciate a layman’s explanation until I can Google my head off later.
What I thinking right now is that I believe I should ask if I could see a neurologists before any surgery stuff. My pain management doctor said he believe that if I had surgery on my wrist and elbow, that I’d do better and not have the nerve damage. It’s not that I don’t trust him, it’s just he’s new in practice. I've had other surgeries so not looking forward to any as I'm sure you can all agree.
If this helps here are my other crap ton of health issues besides the latest ones.
Cervical radiculitis
Rheumatoid Arthritis
Spondylosis
Hypertension
Cubital tunnel syndrome
Somatic dysfunction of spine, thoracic
Hyperlipidemia
Varicose veins
Sacroiliac joint pain
Nonalcoholic steatohepatitis (NASH)
Impaired fasting glucose
Esophageal reflux
Disorder of kidney and ureter
Cramp of limb
Cervical facet joint syndrome
Backache
Seborrheic Dermatitis
Allergic Reaction
Hypokalemia
Gastritis
Type 2 diabetes mellitus without complications
Hypothyroidism
Allergic rhinitis
Uncomplicated asthma
Lumbar facet joint pain
Fibromyalgia
Elevated alkaline phosphatase level
Depressive disorder
Cervicalgia
Edema
I will take you up on the number! Just can't right now...will get with you later on that. Thanks for the offer. Dixie