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Originally Posted by samsonjake
Hi. My name is Shelly and I was just diagnosed with Tarlov cysts. I'm feeling frustrated, mad, while at the same time ecstatic that I'M NOT CRAZY! I currently take Celebrex, Requip and Tramadol for the pain. Not sure any of it works. I started Lysine today. Was told that there really isn't anything that I can do except go to a psychologist and learn pain management mentally. Going to neurologist this Thursday and am going to present my findings on here. I have little kids, a part time job, and I'm only 37, which I was also told that I'm very young to have been diagnosed with these. Worried about how I'm going to feel when I'm 60 when I'm in this much excrutiating pain at 37. Thanks for listening.
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We have a neurosurgeon who is going to operate on Timy's. T.C. She has been in pain for 5 years and no one could find anything wrong with her. Dr. after Dr. and test after test ..then they sent her to pain management, physical therapy and a shrink! Now it has been found. A T.C in her tailbone area. The op is not without risks but she can not stand the pain another day and is willing to take the chance. I am scared! She is 50 and I am 70. She is single and lives in my loft. She is scheduled for Dec. Some of these cysts can affect the nerves in the spinal cord. Her pain goes from her left butt cheek to her thigh and down her leg. Her inner thigh and some of the back of it is numb. Her leg has dropsy sometimes and she stumbles because it just doesn't feel right. She can not sit or lay down for long periods because of the pain. You can not spend your life standing up! Good Luck to you. I hope you get some answers and relief!
J for Timy