Originally Posted by Clareb

Hi, I am a 47 yr old mum with long standing Lupus/UCTD - mostly mild. In the last 2 years, I have been experiencing burning on the inside of my arms. This is worse during flares but constant generally. Aggravated by swallowing bulky foods & yawning for some reason. Lately I have been experiencing a feeling of ice cold water on the back of my thigh which is becoming more significant (no flare currently) I also have a weak diaphragm - cause unknown. My B12 is on the low side of normal and my WBC is always quite low but all other tests are normal including SFEMG & NCS done in April 2014. The latter was done to exclude MG as I fatigue/weaken quickly. My hips have become chronically sore and this is worsened with exercise, not sure if this is related to anything. If it is neuropathy, do I need to flag it up or just wait and see? I take Prednisolone 10mg/day & Mycophenolate 1.5g/day. I am keen to avoid more Dr's attention but also don't want to ignore something that needs to be resolved.

I would be grateful for anyone's thoughts. Many thanks. Clare