I would like to thank everyone for sharing their comments, I understand my condition is much much better then many of yours. I like using these posts as a sounding board for ideas.
After reading everyone's comments I decided to dig a bit deeper into how to diagnosis CRPS. In a couple hours the best I could find was this set of criteria talked about in "
Proposed New Diagnostic Criteria for CRPS" See Table 3.
This paper does a great job explaining the sensitivity vs specificity trade off's.
This is how I have broken down my condition based on those categories.
---- 1 ----
1.1 maybe: My pain hasn’t been out of proportion to the injury but has been abnormal in its duration.
---- 2 ---- symptoms ( things reported to doctor)
2.1. Maybe: No hyperesthesia. Maybe allodynia.
2.2. POS: I have had temperature asymmetry (foot felt warm, no longer does) and skin color changes (redness). Though currently, after two days of measuring they seem to be about the same temperature.
2.3. Maybe: No sweating. Possible Edema.
2.4: POS: Injured toe discolored, though improving. only 40% ROM in plantar flexing the toes.
----3 ----
Signs are the same as symptoms only their observed by doctor at evaluation. I'm not sure what my doctor observed or how to take this into account.
----- 4 -----
4.1 The doctors haven’t offered another diagnosis that better explains the signs and symptoms.
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Questions I have to resolve:
1.1 Could my duration be due to mis-treatment of foot and toe?
2.1. Have I had allodynia? That is, could the warmth in my toes be considered allodynia? We should note that warmth and redness are always as result of walking or sitting. My research suggests no, it doesn’t match the symptoms of allodynia.
2.3: Could the swelling, (mild and local to the toe, in line with what you would expect) be considered Edema? Would this count as a condition?
3.1 Same as 2.1
3.3 Same as 2.3
4.1 (Same as 1.1): Could I still just have delayed healing due to poor management (not enough rest and immobilization).
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So far as I can tell this creates two scenarios.
It’s a fracture that took a long time to heal due to mistreatment.
It’s CRPS with statistically unlikely set of mild symptoms.
I know I have two diagnosis of CRPS, but after consulting the literature i’m not sure that really settles the matter, given the preference in the medical community to avoid False negatives. The sensitivity and specificity rates in that paper make it clear its very easy to diagnosis this incorrectly. My next step is to bring these concerns to my doctor (10/1/2014) and if he can’t rule it out to investigate further tests and opinions.
Thanks for everyone's suggestions!